Monthly Archives: February 2010

Look at my Tommy 2 (Well technically he’s not mine)

If you don’t like small furry animals look away now.  Here’s some pics I took of Tommy while we had him and because he’s ‘so adorable’ (imagine squeaky soppy voice) I felt the need to share them.

 ‘Hey, what’s going on?’

 

 ‘What are you looking at?’

‘I was enjoying my sleep and I’d like some privacy.’

 ‘If you’re not going to leave me alone, let’s see you show this to polite company!’

 Ha, fortunately we have the technology.

We were supposed to be having Auntie Ann’s own dog, Ben, instead but it was just as well we had Tommy again because Ben wouldn’t have been interested in going out in the snow after all he’s only a Bernese Mountain Dog!

 I think the reason I had trouble with my photos last week may have had something to do with Tommy.  He insisted it was a good idea for him to sit on my knee so that he could look out of the window and warn off attacking birds.  Once this job was done he endeavoured to assist with the photos by putting his muzzle firmly on the lap top while I was typing on the wireless keyboard obviously in an effort to speed things up so that we could get on with his walk.

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I Won, I Won, I Won

The Red Ruby Rose Peacock clutch bag is mine, all mine!!!!!  I had to check a couple of times to make sure it really did have have my name on it even though the notification was through an etsy conversation so was obviously mine.  I’m thinking this is marginally better than the shortbread but probably on a par with the novelty egg cup. 

Also on Thursday we received a letter from the Royal giving me an appointment next Friday.  So I gave them a call on Friday (it was too late on Thursday when we got home from the mother in law’s who had monopolised our week a bit but that’s another story or rather blog post entirely) and the funding has come through for Plerixafor.  I decided to go with the NHS funding after my little moral dilemmia (you know who you are – thankfully Ruth [Roobeedoo] you solved it for me too by saying that if your FL was 45 it may be a different matter).

Myeloma Questionnaire

I’d like to say I don’t know how I do it but I do.  I’m extremely inquisitive and completely unafraid to ask a question even if it makes me look stupid.   So…

Statistically I should be an old fat meat eating black man who’s spent loads of time paddling in petrochemicals.

Instead I’m young, I think, female, white, was slim, fit and am still otherwise healthy, I was vegetarian for about 10 years and vegan for about six of those and even after becoming a carnivore again didn’t consume a lot of meat.  I used natural products for cleaning and body care, organic cotton bedding, water based paints, no weed killer in the garden, bought some organic veg, didn’t use anti-perspirant on a regular basis (erm, maybe I shouldn’t have confessed that one), didn’t have anything with artificial sweeteners in, avoided hydrogenated vegetable and trans fats and still don’t own a microwave.  Oh, and I hardly ever drink alcohol.  From that list I think I now know why a friend used to address my birthday cards ‘veggie hippy weirdo’.

Anyhoo being quite interested in stuff like this and after reading that Robert Kyle a myeloma expert said a cure would be easier to find once the cause was known I figured there would be a questionnaire somewhere on general lifestyle and exposure to certain substances for people with myeloma to complete.  I looked but couldn’t find anything on the web except a study relating to aspirin and paracetamol, so I sent an email to the nurse at Myeloma UK.  I thought it would be easier to show the emails.

____________________________________

Hi

I read from Dr Kyle in America that a cure would be easier to find if the cause was known (I’m paraphrasing) and since it’s thought that one of the possible causes is petrochemicals is there a questionnaire anywhere about exposure to such substances that myelomaites can fill in.  Particularly us younger ones since it would be easier to identify potential substances as we haven’t had as long to build up a varied collection.

I figured if I’d thought of this there must be one out there somewhere. I have searched on the web but can’t find anything.  If there isn’t one could I start one, well I could but what I mean is would it be of benefit even if it was an unofficial one and what would the questions be.

Thanks for your time.

Kind regards

____________________________________

Dear Paula

Despite much research, the exact cause of myeloma remains unknown. There are thought to be multiple trigger factors which may increase the risk of developing myeloma. As you know these include exposure to certain petroleum-based chemicals, some pesticides, high doses of radiation as well as some viruses. Myeloma is likely to be the result of several factors acting together, however, and in many cases people who develop myeloma have not been exposed to any of the environmental factors mentioned above.

 It is worth bearing in mind that research looking at the cause of myeloma is all from epidemiological studies which only determine what factors are associated with disease but can never prove that they cause the disease, nor if you are exposed to it you will definitely get myeloma. As previously mentioned in myeloma, many other risk factors have also been suggested including age, gender, race, family history, MGUS, radiation etc so petrochemical exposure is another in a long list. Unfortunately the answer is no one knows what triggers myeloma.

Professor Morgan at the Royal Marsden Hospital in Surrey carries out research on the genetics of myeloma. He is an internationally recognised clinician with a special interest in the treatment of myeloma and associated blood cell cancers. I believe one of his projects looking at the causes of myeloma, involves a lengthy questionnaire which includes the history of the patient’s exposure to certain substances.

I hope that this has been of some help but please do not hesitate to get back in touch if you have any questions or would like to talk things over. I can be contacted directly by email as before or on the freephone Myeloma Infoline, the number of which is below.

 Kind regards

____________________________________

So I spoke to Professor Morgan’s secretary and she suggested I email him.  So I did.  Apparently they did compile a questionnaire but did not pursue it and it’s now with an American doctor but it asked ‘a few specific questions about benzene, the immune system and other imponderable questions’ and he wasn’t sure it was much use. 

 So does anyone know of one out there or think one would be a good idea? 

 

 

We have photos…

but not of my hair yet. B did take some but I don’t know who of it certainly wasn’t me. Whoever he took had short purple hair and looked FAT.

 

 

 

We went to the eye clinic today just for a check up because when I had shingles last year they were near by left eye (everything is fine). I wanted to get the nosebands in the post and because we’ve had Tommy Ticklemouse again since Friday I didn’t have time to get them parcelled up before going I took them with me. So I sat in one waiting room folding them up and then sat in another stuffing all 23 of them into an C4 size envelope with Bernard saying constantly ‘There’s no way they are going to fit. You should have used two’. I could feel people watching curiously and the pressure was on but I managed to get them all in then had a bit of time getting them in the post box at the hospital.

As a little aside is there anybody other than my husband that considers that this is the appropriate storage location for toilet roll?

To Do List 5

New

*  Make cards for Sunflowers Centre.  This is where the Blood Support Group is held and this year Sunflowers is the Liverpool Chamber of Commerce sponsored charity and someone there suggested that since the staff are constantly buying cards it would be a good idea to put a box of cards in reception and the proceeds go to Sunflowers.  So I kind of volunteered to make some – ASAP

*  Make cards and other stuff for lady who is fund raising for Myeloma UK – by end of month

*  Power of Attorney for mother in law – sounds like a reasonable swap

Still Hanging About – not started

*  Make 3 baby presents (2) 

 Still Hanging About – but started

 *  Sister in law’s birthday present (3) – needed for 28 Feb this year

*  Aran cardigan for me in rose tinted colour (3)

*  Post patterns and knitting to Ravelry (3) – now got three knitted items on

*  Pattern for colourful baby blanket in squares (2) – again if four rows count

 Done

*  Make nosebands for donkeys (4)  – it’s been hanging about for so long I had to wait to post the list until they were done.  There’ll be some comfy donkeys in Palestine courtesy of left over fleece and recycled Velcro.  How do you recycle Velcro I here you ask.  Well you sew one piece to pelmets and staple other to self made pelmet board then realise after two weeks of sticking the pelmet back up that the idea of using Velcro so they would be easier to take down and wash isn’t a goer.  So you unpick all the Velcro from the pelmet, unstaple it from the board and staple the pelmet straight to the board and never take it down.

Photo of donkey nosebands – What you can’t see it? – When I opened a blog to learn stuff I couldn’t decide between blogger and wordpress so because I didn’t know which was best I opened both.  At weekend I decided WordPress was for me since then I tried to add a widget to the list over there —> and lost everything else, I did find out how to alter things when getting them back but couldn’t remember what it was I wanted to add.  And now I can’t get photos on.  In the process I have added 11 to the Gallery (is that enough to charge admission).  So for the time being a little imagination is required.

*  Dinosaur Tested by Tommy Toy

Photo of happy, smiley black floral T-Rex type dinosaur (give that imagination a bit of a work out)

I also finished a baby jacket and hat that have been hanging about for ages (since approximately 1999, yes you read me right, I’m hanging my head in shame).  They were obviously waiting for the right owner.  Whenever I remembered them up until now the baby was either too old or not suitable.  The hat should also have birds on it but there is a limit to how much intrasia knitting I’ll do.  The pattern is from Bright Knits for Kids by Debbie Bliss.  And I little pattern of my own for the same little one.

Photo of cute blue, pink, green, cream, brown v-neck baby cardigan with pink birds with yellow legs and matching stripy hat.

Photo of green ribbed baby hat with stunning matching ribbon bow.

Red Ruby Rose Bags

I wasn’t actually going to mention this because the more people who enter the less chance I have of winning but I felt the need to share these gorgeous bags.

I’m not really a handbag kind of girl.  When I go out if at all possible I put my purse and keys in a friend’s bag and if I go out with hubby I obviously don’t need to take anything.  If I go out on the bus I take a paper bag with my knitting in it.  (I have a bit of a fetish for paper bags.)

However I came across Red Ruby Rose’s shop and blog a few weeks ago and she is having a giveaway for this …

 

I want it even though I may never use it.  As William Morris said ‘Have nothing in your house that you do not know to be useful or believe to be beautiful’ – or something like that.

Actually I thought I may as well mention the giveaway because I’m not holding my breath over it as I have only ever won two things – a tin of shortbread in a boy scout raffle, don’t know who won the boy scout, and at the Blood Support Group AGM this…

a Novelty Snowman Egg Cup Set, in case you were wondering.

The link is over there —> somewhere, if you can’t find it I can’t be held responsible!

Hair Cut 3

I went for my hair cut again on Thursday.  I didn’t give much thought to the maintenance side of short hair on the basis that it wouldn’t be there for that long.  When it was long I religiously went for it cut twice a year whether it needed it or not.  So I copied Roobeedoo this time and went for an asymmetrical look, a very much asymmetrical one, the first time I had it cut short was far enough.  Did I mention that I’ve now gone from red to purple?  I had to ask for maintenance tips since the red had really faded and apparently BRIGHT ones do.  So there followed a shopping spree for colour treated hair shampoo, conditioner and some serum which have all been applied for the last two nights.  The hairdresser was heard to say … ‘You can always do this’ (light tousling with fingers) ‘for a funky look for a change from the sleek one’.  Well yesterday I had a sleek top and a funky bottom and today I have a very funky everything and look like I’ve been dragged through a hedge backwards!  Not too sure the sleek look is going to work out.  I’ll post a picture if I can get B to take one that won’t scare small children.