We went to the hospital this morning, allllllllllll this morning in fact, I know this because B kept stating things to this effect. There at 9:03 approximately out at 12:20ish so maybe he had a point but it was worth the wait.
HB – 8.8*
Platelets – 28
WBC – 2.5*
* These both dropped the day after resulting in a GCSF injection (WBC 1.8) and the stopping of the Aunt’s visit
HB – 11.8
Platelets – 28
HB – 11.8-14.8
Platelets – 150-400 (mine in March 242)
WBC – 3.5-11.0
Apparently my figures today are as good as could be hoped for three weeks post SCT! I’ll take the nice doctor’s word for it.
Yesterday I had a recurrence of the rash I’d had previously, I thought the marks on my left arm when I woke up were either that or the way I’d slept on my arm. Not much difference I know but by late afternoon I would have had to slept on well, everything, except my head. I rang up the Bone Marrow Unit and they said I could take Periton if I itched but since no other symptoms and I’d had it before they’d check it out today. Today however it’s very faint.
The strange thing is I felt remarkably better yesterday and quite fantastic today. The doc at the time said it was an engraftment rash and was a good sign. Maybe it was my stem cells having another push. No nap needed yesterday, really tired on getting up but so much better as day wore on and no nap again today.
I go back on Thursday for more blood tests and the inhaler antibiotic but I’ve actually been discharged from the Bone Marrow Transplant Unit. How quick was that? I thought it would be months. And when the doc said ‘We’ll write to whoever referred you.’ There followed an arduous discussion about changing to them.
Me: ‘Well actually I’ve enquired about changing consultants.’
Doc: ‘Would you like to stay here with us?’
I of course said I would need time to consider it, blah, blah, blah. Yeah, right! A short ‘Yes!’
‘Would like to continue care here’ written on notes and a clinic appointment with Myeloma doc in three weeks. How simple was that?
When we first sat down, before wandering off for drinks twice, the lady behind me mentioned the doc in question. So I tapped her on the shoulder and asked what she thought of him after explaining why I was asking. She’s been seeing him for 16 years and says he’s lovely and couldn’t recommend him highly enough but the need to point out that although she tends to call him doc he is actually prof.
Whilst in the short queue for the second lot of drinks the man behind me, in some sort of nurseattire, coughed on the back of my head. I was horrified but recovered by wiping hand sanitiser on it at the next available machine!
Yesterday we managed a walk in the park where I spent loads of time as a kid but where I hadn’t been in a lonnnnnnnnng time and we did something I haven’t done in donkey’s years – FED THE DUCKS!
Here’s a few pics…
Widdle fluffy ducklings!
Bigger ducks and puffed up swan, bottom left, is that some sort of courtship ritual?
Quarry garden. When I was a girl, many moons ago, this was an aviary. I know that’s where birds are kept but this was more guinea pigs, rabbits, oh and a peacock. It permenantly had the heavenly aroma of rabbit poo!
The thought was there, somewhere!
That cardy makes me look bulky, okay? Okay! I have actually finally lost 6kg not that I feel like it! (Not much shifted at first but apparently I was holding water and even 2kg can make a big difference bulk wise on my slight frame – nurse’s words not mine.)