After a meeting with one of our consultants, the myeloma nurse, the second ward sister present, refeering I think, me, B, and as circumstances turned out, Auntie Ann and friend Chris T not G, I got home leave until Sunday night. Let me tell you I was glad to get back for a rest – I have no idea where the weekend went. I didn’t even have time to get dressed Sunday. I mean yes, some days I just choose (cba*) not to get dressed, but Sunday I fully intended on putting outside clothes on but it just didn’t pan out and yet I didn’t seem to get that much done.
Anyhoo back to Friday and my return to my usual place of residence. After him appearing all upset about the current situation I arrived home to find that B had already allowed another bird to move in! AND if that wasn’t enough Bud was obviously fond of her too. Okay Bud didn’t actually say so but the fact that he hadn’t tried to eat her speaks volumes. Here’s the floozy showing off her ass…
I mean I am just basing Bud’s fondness on the fact that he hasn’t invited her to dine with him with her being the main course at least. I for my part at welcoming her to the family provided access to the greenhouse in case she wanted a dry sheltered spot.
B bought some bird seed when he shopped on Saturday and I liberally applied it round the garden included into the green house. Now although I never saw Pigina venture in there herself, the friend that brought me back in to The Royal last night saw her wander in there for some seed. She actually spent Saturday night perched on an upright paving slab near the shed – Pigina that is not Chris G.
Chris thinks Pigina might be at risk of getting eaten by a bird and indeed that’s how she comes to be staying with us in the first place. I however an of the opinion that she flew into the window. I am basing this on the greasy looking pigeon size splatt on the back bedroom window…
It’s about central – you might have to tilt your head at an angle.
Now I have really no idea where the time went at weekend. I had BIG plans and yet didn’t seem to get much done. What I did manage was to finish a Myeloma Buddy I started on Friday.
One of the other things I did was a bit of tidying up, now bearing in mind that B tends to let stuff pile up on the dining table while I’m away – heck he attempts to let it build up when I’m at home.
The flowers were kindly given by a neighbour over a week ago – they appear to have kept well!
And look at this item of unsolicited unaddressed post we received…
So where are we with regard to the myeloma well, as a nurse said when she was asking me what the consultant said this afternoon, ‘so really everything is still up in the air’ and basically it is. I saw an oncologist this morning regarding radiotherapy on my arm, as I thought, but she also mentioned it for treating the myeloma in the spinal fluid. Chemotherapy injections into the spinal fluid would have to be put on hold whilst the radiotherapy was taking place as the combination would be too toxic. The doc suggested radiotherapy to either my skull or my skull and spinal cord, I opted for the latter however do not have to make a final decision until later in the week. There could possibly be one injection before and then they could be recommenced after. I’ve opted to get a bone marrow biopsy done tomorrow, well I guess that would be today now, Tuesday anyway.
Anyhoo let’s just cut to some good news. Yes we do have some! I asked about starting overnight peritoneal dialysis today and the PD nurse came for a chat. Following on from a conversation he’d had earlier with the renal consultant when she came to see me it turned out that they thought the frequency of the PD could be reduced, either by doing it times a day for seven days a week or four times a day but for less days. I’ve opted for four times a day Monday, Wednesday and Friday with nothing on the others other than draining the overnight fluid off. I asked B for his opinion when he came in and he, after initially stating that it was up to me, said that Tuesday, Thursday and Saturday would be more practical – and he is of right of course.
I got swabbed today as I’ve been a bit snotty, yesterday and this morning, and may not have thought anything of it but for another couple of patients coughing last week. I was told it was nothing that should concern me but we’ll see.
The internet is a wonder thing when it works right – I won’t say how many times I tried to post this last night but it wouldn’t play ball. Hence me sitting here now having my breakfast in my usual half asleep daze thinking ‘Oh yeah I couldn’t keep my eyes open so I left it!’
I really didn’t mean to go on this much and really just wanted to let you know I was still here and actually feeling pretty good. I did mean to share this last thing however. I learned something today. I learned it as I went for a wee just as B arrived back with my singapore chow mein from across the way. I whizzed (get it whizzed) to the toilet and in my haste to get to the grub was in ‘wee position’ before I took full account of my surroundings. In fact I was mid wee. What I learnt was that if you are mid wee and notice something unpalatable on the floor at the side of the toilet then the natural reaction to flinch away from ‘the something’ kicks in before the reaction to ‘stop weeing’!!!!!!! Fortunately I had plenty of jim jam bottoms.
* cba – can’t be a&sed