After Haemodialysis (HD) on Tuesday I sauntered down to the Peritoneal Dialysis (PD) Unit to start my CAPD – continuous ambulatory peritoneal dialysis training. When I left at three ish the sister said ‘Go home and relax, you’ll be tired after this morning and the concentration this afternoon’. I thought ‘Well I have been awake since 5.25 am but don’t feel too tired. However I got in the car and felt whacked. B took Bud for his walk while I had a shower, put my jim jams on and settled down on the settee. A friend phoned at tea time to ask if it was okay if she called round that night – it was a good job I’d had a kip.
Wednesday I went for more training leaving the house at nine and B picked me up at two to go to the dentist. I’ve still got the numbness in my lip/chin and it’s been a bit achy. The dentist couldn’t find anything wrong visually or by tapping or poking. She did say that any ‘proper’ toothache could be being masked by the numbness. We agreed I’d mention it at the Royal and if they recommended any tests she could carry out she was more than happy to do them.
I so nearly didn’t get the appointment. I got there and the receptionist said I was next on her list to contact as they had a problem with equipment and my appointment would need to be rebooked. I explained about the forthcoming treatment (still no bed available as at last Friday) and the need to get any infection identified. The dentist agreed to see me on the understanding that if treatment was required it couldn’t be done there and then. She was however able to identify that I have good dental hygiene.
A friend called round on Wednesday night and brought her laptop as she couldn’t get her printer to print from it and her son was working away. As Pat has the same level of patience with anything computer related as the average three year old has with logarithms she asked if I could do it. The laptop wouldn’t talk to our printer either and when I attempted to connect it to our broadband I discovered the reason I hadn’t been able to connect B’s xbox – apparently you can enter the code 57 times and still not get connected if you’re entering the wrong code – 8s can look a lot like Bs.
Thursday I had potentially my last HD. Potentially because Prof didn’t want me doing it during chemo as he felt it increased the risk of infection. However the sisters in PD said it was unusual once PD was started for people to go back to HD, unless they had peritonitis. The training on Thursday including spotting the signs of peritonitis basically an infection in the peritoneum where the fluid resides. From quarter past three on Thursday when we left the Royal I was on my own!!!!!!!!!!!!
So far so good apart from some minor boo boos and B asking me if I felt dialysis is taking over and if I thought I had a sh*tty life. Unlike last year when he asked me this and I countered that by association that meant he did too I just went with ‘No’ – I was lying on the settee at the time half asleep. The PD is getting quicker as it becomes more familiar.
Last Monday we (I say we but it was mostly B with me getting in the way I think) made room in the garage to accommodate the delivery of my PD supplies. I think this may have resulted in a pain in my right shoulder blade which I aggravated on Friday when I carried a box upstairs.
I’ll share details of all my free goodies (as pictured below) and what I do with them shortly – basically when I can take photos of the relevant things without contaminating anything that needs to be sterile.