I’ve been so sleepy over the weekend – well I say sleepy what would be more appropriate is ‘I’ve been so asleep over the weekend’. We went to the Royal on Friday and I felt okay but by the time we got home I needed a nap, ordered tea, then napped, ate tea, then napped. Saturday was pretty much the same although things could have been made worse on because at 4:10 or 4:49 (look I’m really not good when I’ve just woke up even if I am seemingly quite awake) I got up – if B hadn’t been in bed (snoring) I would have put a film on and then nodded off but I got up and knit some squares (being collected by one of the nurses on the Day Unit) and then fell asleep about 6:30 until 9:20 so that gave a potentially sleepy day a definite nudge in that direction.
After I’d woke up for the second time on Saturday, I woke B up, rang Auntie Ann to ask her did she want to join us for a meal out later, slept, went out for tea, managed to keep my eyes open until Auntie Ann went home, then had another kip before getting off the settee for a shower and then I had a little nap before going to bed.
Sunday was very much rinse and repeat – except I insisted on going on Bud and B’s walk and it took us an hour and 10 minutes to do about half the usual walk that takes an hour and 20 minutes – but I got some fresh air and we all know that makes you sleepy so guess what I did when we got home – napped! I woke up for tea and then managed to perk up to answer a friend’s phone call and then I napped again before bed. If it’s true what they say about beauty sleep I should be a busty, leggy stunner by the end of the week.
One of the things we did pick up at the hospital was these, which according to the NICE guidance notes have a value of £4,365 excluding VAT…
I start taking them tonight. Tonight as they can cause drowsiness and I so need some more of that during the day. I’m also on Fragmin injections to avoid a thrombosis and Allupurinol to protect my kidleys. As I’m not taking dexamethasone, like with the Velcade, I don’t need to take Acicolvir or Septrin.
I’ve said previously that a gauge of my general wellness is how much craftiness I carry out, Chris was horrified to discover last night that I hadn’t blogged since Thursday – as she was of the view that this too is now a similar indicator.
So onto the craftiness I have been up to. Last Thursday I showed this little pile of body parts…
they are for two teddy bears, however I’m a tad concerned. I have to admit I have struggled with the odd piece and quadruple checked the stitch numbers several times. On Friday I wanted something simple so did part of the dressing gown for one of the bears. I mean the back was basically a square of knitting with a little shaping at the neck. Let’s have a little lookie at how that turned out…
Yes, that short it is the back and the long bits are the fronts and I didn’t even notice when I knit the pieces together at the shoulder joints! So I’m not convinced that one of the bears isn’t either going to have a limp or several heads.
I will share more about our Friday appointment at the Royal once I’ve decided which parts are actually fit for polite company. Oh, it all started off so well, we met Sean and his brother Nigel and then had coffee and cake with Sean. B seemed his usual self despite having had only an hour’s sleep but from then on, and I can only put it down to sleep deprivation, well, let’s just say it’s a good job I don’t blush easily. Usual service was resumed once he’d had about an hour’s kip in the waiting area of the Day Unit when we went back up there for my Zometa – maybe the snoring helped as well!
You could always call that bear “Dex Bear”
Challenging days when you are so tired… have they checked your platelets to be sure you aren’t running on ‘low’? Intending things are looking up for you and B and Bud….
The Lenalidomide completely knocked me out yesterday, I couldn’t keep my eyes open. (((hugs)))
Ah so you are Rev-ing up today then? Enjoy that! I am surprised you aren’t chasing it around with some dex, but I suppose they want to save you some treats for another day. Hope it is side-effect free! A bright red rash is common early on, but FL only had it once and hasn’t had it again since. Enjoy your beauty sleep!
Well I was only saying to Mike this morning that I’d had great fun with Arran. Never known such great four-ply. 😉
I realise now that you probably haven’t the faintest idea what I was on about 😉
the fact that i had to read it twice on wednesday attested more to me condition than your humour even though i was feeling better. I thought it was outrageously hysterical an even took the time to explain to B later about aran and 4 ply because i found it that funny, however i should have saved my breath ;D
Just love reading your posts! Your positive attitude and productiveness in spite of hospital visits, chemo, feeling lousy and wanting to be home with Bud are an encouragement to us! Look forward to seeing your finished products, several heads and a limp or not!