A few appointments ago when we had a woo hoo and a couple of WTFs Roo commented it was more of woo foo, so let’s see how today’s appointment went on the woo hoo/foo-omitor. Oh, and Chris accompanied me whilst B slept it up at home.
Hug each off one of the health care assistants – woo hoo
Prof said I was very intelligent – WOO HOO (Chris restrained herself from commenting that I was a real smart arse)
Prof said he was perplexed – hint of foo
Paraprotein in blood not detectable – woo hoo
Cytogenetic results not in – mmm as I shoulder shrug – as in not that important in the scheme of things…
Plasma cell level from bone marrow sample – 90% foo foo foo foo foo foo foo
Prof showed me the computer screen to show he wasn’t getting confused at his age after we had a déjà vu moment of conversation from our last appointment but in reversed roles…
Prof: ‘It’s 90%.’
Me: ‘Hahahahahahahahahahahahahaha!’ Okay, well obviously not that bit, the Prof didn’t laugh last time.
Chris said later that she thought I was possibly the only myeloma patient he saw who laughed at such news but as I’ve said before being miserable doesn’t cure myeloma – correct me if I’m wrong.
So my monoclonal protein level as at 29 July is not detectable yet the plasma cell content of my bone marrow as at 5 July is 90%. As I explained to B the sample could theoretically have hit a pocket of plasma cells and the rest of my marrow could be as clean as a whistle but that still left a pocket of not 10%, not 20% but 90%!
Prof said that somehow there was a 90% content sitting there inactive – as shown by the still undetectable paraprotein level.
I asked if it was likely that if a bone marrow sample had been taken after my transplant it would have shown the same result and he said yes.
So where do we go from here? Another stem cell transplant using my own cells (autologus/autograft) followed by a mini one using donor cells (allogenic/allograft) was recommended. We’ll discuss this at our next appointment which will be with the transplant doctor.
And a definite woo hoo was getting on the scales and being 2kg (4 lbs) lighter than six weeks ago – it looks like that extra walking is paying off. Although after my sugar binge yesterday – 500ml of Dr Pepper and almost* the whole of a 200g bag of chewy sweets that might change.
* I forced some (one or two) on B and Bud so I couldn’t be accused of consuming the whole bag but even so B was heard to say ‘Have you eaten ALL those?’ – mind you I think he might have been talking to Bud.