Guess where I am. Thinking about it that’s not difficult enough, heck its not difficult at all – chances are if I’m on a short break I’ll be in The Royal – so have an attempt at what brought me here, other than an ambulance. It didn’t even have sirens on and indeed had blacked out windows on the sides rather than no windows. I’m pretty confident that you won’t guess – as I never would myself.
Yesterday I went to Willowbrook Hospice to the crafting with geriatrics day, I mean Day Therapy. There were a couple of really old dears there one was 94 this July but they were a hoot and really nice respectively. Willowbrook is aimed at people with cancer and other life limiting illnesses and I think one of the other ladies had had a stroke.
I’d felt tired but not majoraly different from the usual lethargy associated with being anemic – it turned out I was just 0.3 from target at which a transfusion is given – but otherwise okay. I crafted when I got there and then sat in on the discussion ‘Anxiety Management’. I didn’t know whether I would learn anything but thought I’d give it a go so I’d know whether I wanted to sit in on any others. We then had lunch – a gorgeous tomato soup, cottage pie (which I managed to keep down despite throwing up the last two I’d made at home) and eve’s pudding – there was even red, white or rose wine on offer – I had orange juice I’ll have you know! The last activity, or should that be planned activity, was a relaxation. None of the activities are compulsory and some attendees went back to the craft room.
I made myself comfy in a recliner with a bean bag type neck pillow and a triangular cushion under my arns - because this is how they support them. After some muscle tensing and releasing we started a meditation, I guess. The lady holding the relaxation told us to imagine a luxury resort with a fantastic room, a pool and… well that’s all I remember the next thing I knew I was sitting in the chair minus the cushions and a lady, who turned out to be a doctor, was testing my reflexes and asking me stuff accompanied by a nurse. She then said I’d had a turn and I noticed the portable dividing screen behind them.
As I was capable of walking I got to go and sit at the dining table and people asked me if I was feeling okay. ’Yes’ I answered thinking ‘Of course, I’m fine’. It was home time now and B was collecting me. I rang him and asked him to come in – fortunately he had his phone on which isn’t usual. I can’t know remember if I’d been told to get him inside or just did it.
One of the nurses took me into a side room and I asked what had happened. She said I’d had a seizure! I have absolutely no recollection at all. Now if I remember rightly they’d phoned the haematology team and subsequently an ambulance to take me to The Royal. As I wasn’t an emergency and they had these to deal with first they’d get to us as soon as they could. Bearing in mind my ‘turn’ was done by 2.30 pm -ish we were still ambulance-less by about seven. One of the volunteers, who’d stayed behind, chased it up again. Meanwhile both my Auntie Ann and friend Chris were heading to The Royal. Chris after tea but Auntie Ann straight from work. I left a message and sent a text and she decided to come to Willowbrook instead or rather as well since she was at The Royal car park when she got it. I’d been given some sandwiches and mini cakes…
and B had been home and then called back ready for work and had half my tuna sandwich and a piece of cake before going back home and taking Bud out for a walk – it seemed the better option
The ambulance turned up eventually and it wasn’t even one of the regular emergency vehicles, it was a converted (properly) minibus with blacked out windows. I realised about the windows as I waved to Auntie Ann as we went past and then the penny dropped that she couldn’t see me.
We arrived at The Royal and Chris was waiting outside. We got shown into a four bed room in the Acute Medical Assessment Unit and I got to keep the blanket I’d been given in the ambulance which although proclaiming to belong to ‘Dewsbury & District Hospitals’ was, I mean is – as I still have it, lovely and soft. One of the paramedics said it reminded her of a baby blanket.
B had been panicking about my peritoneal dialysis fluid exchange as I should have done it by three and when I got to the assessment unit and asked the nurse said she wanted to speak to the renal docs before I did it – if that was okay. I’d spoke to one of the PD nurses and he’d left a gift package for me that needed collecting from their unit.
I slept really well, or so I thought. I woke up about five for a wee and found I had a bandaged cannula in the back of my right hand with an IV attached to it. The nurse disconnected and I said that I didn’t even remember having the cannula put in. She said I wouldn’t they’d given me something to ‘calm me down’. Now it was early and I was more than half asleep so I basically went back to sleep. When I woke up properly I thought ‘calm me down?’ Well I figured if I’d been with it enough to make a decision I must have said okay so there was no point fretting and if it wasn’t possible to consult me then…! Well there was no point fretting over that either really.
Just after nine a face I recognised appeared round the edge of the curtain next door – it was one of the blood doctors. He asked me what I’d been told to which I responded nothing. Apparently I’d had another seizure (sounds a bit more medical than fit) in the night. As it turned out I had the neighbouring young lady who was staying with her grandmother to thank for alerting the staff.
I had a CT scan on my head yesterday which showed no evidence of a bleed or an infection – and am booked in for an MRI anyway which will now be brought forward. Some of the medications I take can cause seizures but I’ve been taking them for long enough that this side effect should have happened by now.
I feel generally alright – if tired but then again I am anemic so that could be the result of some of the tiredness. Last night I could feel myself nodding off at half nine and was going to do my PD exchange at ten. So I put the alarm on my phone just in case. I woke up at 4.15am and possibly only then because I needed a big wee.
Tonight I’ll be telling the night staff to wake me at ten as well since last night not only did I sleep through the alarm but also through B ringing me at 11.30. I wouldn’t have minded if I’d been in a proper sleeping position but I was still sitting up in bed with the bedside table across the bed and yet had managed to get nearly seven hours.
The IV I had in the early hours of Friday morning was an anti-epilepsy medication which I’m not on in liquid form. You know we had a little Pomeranian that developed epilepsy as he got older but if everybody’s fits are the same at least I now know Whisky wouldn’t have had any recollection of them at all. I once fainted and remember the world ‘closing in’ but there was none of that with these (well one at least I was asleep for the other) and if I hadn’t been told I would be none the wiser. B suggested it was going Crafting with Geriatrics that had caused it while I said it was just as well I had as I was certainly in the right place. I mean what would have happened if I’d been at home.
Needless to say I get to stay in (in my own little room at the moment with an ensuite toilet) while a source for the seizures is found. B’s been to the wool shop today and got me some exciting new yarn to bring in – it’s alright don’t panic I do have some crocheting with me – I took it to the Therapy Day!